|HOME | PAST ISSUES | SUBSCRIPTIONS | LINKS | CONTACT US | SEARCH|
In the summer of 1989, when I was a LIFE magazine reporter, I heard that a young man with Down syndrome would be starring in a new TV series called Life Goes On. Intrigued, I sent a note to my editor in New York. He was less interested.
Well just do a photo and a caption, he said.
To me, the story was huge. Since childhood, Id been casual friends with Carmen, a bright, charming young woman with Down syndrome. Her parents had mainstreamed her into our small-town Alabama church and community. Shed graduated high school with me, going on to work in a plant nursery. My connection to Carmen made me curious to see how well television would depict a person with Down syndrome.
By many accounts, ABC did a commendable job. Life Goes On ran on the network from September 1989 to May 1993, winning a number of awards. The drama centered around the Thatcher family, whod also wanted to mainstream their son, Charles "Corky" Thatcher, played by Chris Burke, after hed spent years in special-ed classes. Their daughter Becca, played by Kellie Martin, was gifted but socially awkward. Theater actress Patti LuPone played the mother and Bill Smitrovich the father. (Two different actresses played the part of an older sister, who remained on the fringes of the story.)
When I first made my inquiries, the shows initial airing was still months away, and my New York editor was still none too encouraging. I went to Warner Brothers Studios in Burbank to meet Chris Burke anyway.
Chris on Corky
I spent the day with the actor, who was 23 at the time, and his father, along with the cast and crew of the series. I liked Chris immediately. From the first few minutes, he had me laughingor groaningwith his puns and awful jokes.
He remembered that day, too, when I spoke with him again recently. Today, at 42, he still gives his old show high marks for covering uncharted territory:
Back in those days, a parent looked at the disability and didnt see the ability, he recalls. Life Goes On showed that people with a disability can be included. Just give them a chance and let them learn. Thats what the show was trying to teach. By the end of the series, Corky had a job as an usher at a local movie theater, and found a girlfriend, who also had Down syndrome, whom he married.
During production, the series writers often looked to Chris and his family for situations they could dramatize. I think it was a good picture of what it is like to have Down syndrome, and what its like for a parent who has a child with Down syndrome or a disability, he says.
The overall character of Corky had many qualities Chris is famous for within his circle of family and friends. The actor notes, Corky is the one who never gives up. I never gave up. He faces obstacles and he couldnt always reach his goals. But he tries to reach his dreams. Corky is an ordinary person who does extraordinary things. He is a true inspiration, but he doesnt know that hes an inspiration.
From A Caption to a Book
When I filed that initial report to my editor at LIFE in the summer of 89, it was a rough collection of notes and quotes from Chris. But I had so much good material, I had no idea how my editor would reduce it all to a two-sentence photo caption. It turned out that he couldnt.
The next morning, my phone rang early. It was my editor. He had read my notes and could not believe that the quotes were from a person with Down syndrome.
He sent me back to the set for another day. And another. For the next several weeks, I hung out with Chris and his father in their temporary Burbank hometheyre die-hard New Yorkersand at the studio.
It was fascinating to watch hardened show business veterans adapt the show to accommodate Chris needs. People with Down syndrome have some diminished intellectual capacity, although early education and stimulation have gone a good distance towards closing that gap. Still, they shortened Chris hours as well as his dialogue, and allowed for the fact that there were tasks he couldnt do, such as tie a slip knot, because of reduced motor skills. The crew improvised by shooting close-ups of someone elses hands tying a slip knotand life went on.
People with Down syndrome, like Chris, may have weakened immune systems and heart abnormalities. Once shunned and denied medical care and even vaccinations, they used to have vastly diminished longevity. But today most people with Down syndrome are expected to live out full, active lives.
With his persistence and unwavering determination, its no fluke that Chris became the first actor with his condition to play a regular role in a prime-time series. On camera, he sparkled. Like a pro, he was able to act out the sometimes wrenching emotions demanded of his character. More than once I heard, Hes magical. There is something in his eyes that draws you in and makes you care.
Audiences seemed to agree: The pilot episode was a hit, rated in the top 10 that week. Life Goes On became especially beloved by families and rocketed to No. 1 among pre-teens and children. Overall, it drew greater audiences than any show ABC had put in the Sunday- night slot for years.
That November, what started as a photo caption evolved into an eight-page LIFE magazine storywith Chris beaming out from the cover, wrapped in a hug with co-star Patti LuPone.
About a year later, Doubleday hired me to expand that story into a nonfiction book titled A Special Kind of Hero. It landed on a few bestseller lists and was selected as a top book of the 1991 by Library Journal. It is still available on bn.com, Barnes and Nobles website.
Chris tells his story within five chapters spread throughout the book. For the other 11 chapters, I interviewed more than 200 people, including friends, family, cast, crew and writers from the show. I also talked with experts on genetics, education, job training and other issues important to those with Down syndrome.
Seeing Beyond Obstacles
So much has changed since 1965, when Chris mother Marian was advised by her doctor to put her infant into an institution. That same year, a renowned minister wrote in The Atlantic Monthly that all infants born with what was then called mongolism should be immediately euthanized. He argued that these people would have no quality of life, and were only a burden to their families. How wrong Chris and others have proven him.
When he determined he wanted to become an actor, Chris took lessons at every opportunity, and did what he could to learn about his profession. His attitude is summed up in one of his favorite sayings: Obstacles are what you see when you take your eyes off the goal.
Chris is the son of Frank, a retired police officer, and Marian, a retired executive. Before he was born, older siblings Ellen, Anne and J.R., had modeled and acted in minor roles. From the start, Chris parents and siblings encouraged him in all his goals except oneacting. The TV business, they knew, could be harsh and disappointing, even for the most talented and qualified actors.
During Chriss childhood, his family was far more concerned about his basic education. From an early age, he enjoyed pre-school at New Yorks Kennedy Child Study Center. But as he got older, his familynot unlike the one on the showwas dismayed at the poor quality of the special education their local school system offered. They opted out and chose instead private, Catholic-run boarding schools, which were also on the East Coast.
Chris teachers from those years remember the way he talked of his dream to become an actor. He wanted to make an impact, he told them repeatedly. He wanted to show the world what someone with Down syndrome could do. At 14, he asked a teacher to help him with a movie script he was writing. As a young adult, he took more acting classes, as well as courses in filmmaking and comedy improvisation at the Young Adult Institute, two bus rides from his New York home. He spent his allowance on head shots, which he sent to producers and agents.
Chris had an encyclopedic knowledge of movies and television shows, and he could recollect names of actors with only minor roles in his favorite shows. Hed mail admiring notes to them.
Then one day, his world changed when he tuned in to The Fall Guy, a prime-time TV series starring Lee Majors. There, on screen, was a boy with Down syndromeJason Kingsley, the 10-year-old son of Emily Perl Kingsley, an award-wininng writer for Sesame Street. Jason was a regular character on Sesame Street in his childhood years and also played himself on the NBC drama This is My Son.
Chris wrote Emily a note, telling her that he, like her son, had Down syndrome, and that he enjoyed watching Jason on the The Fall Guy. Emily was moved and wrote back, in what went on to become a friendly correspondence.
It was a difficult time for the Burke family, who worried about their loved ones future. Even in the vast metropolis of New York City, it was difficult for Chris to find even a part-time job. He volunteered at a school for children with disabilities where his niece went. In time, he became the elevator operator there. The Burkes were thrilled that he had a salary and benefits, working in a loving environment in which his abilitiesnot his disabilitywere noticed and appreciated.
Then Emily Perl Kingsley recommended Chris for a role in a TV pilot titled Desperate. Chris won the part, and he and his father spent weeks in Key West, where the pilot was filmed. After it was over, Chris returned to his day job running the school elevator.
Though Desperate was not picked up for a series, ABC executives loved the way Chris lit up the screen. They immediately hired the pilots writer, Michael Braverman, to create a family drama that would surround Chris with a talented ensemble..... continued in ABILITY Magazine
|HOME | PAST ISSUES | SUBSCRIPTIONS | LINKS | CONTACT US | SEARCH|