A rare disease is a condition that affects fewer than 200,000 people in the United States. Although the disease may be rare, also known as an orphan disease, patients and families share a common struggle.
The zebra is the official symbol of rare diseases in the United States and is noted for its black and white stripes, which are central to its uniqueness. Everyone has his/her own stripes, those characteristics that make each individual distinct. While each of the more than 7,000 rare diseases are unique, there are many commonalities that unite the rare disease community.
The purpose of Rare Disease Day is to harness the creativity and energy of the millions of people around the world with rare diseases – and the millions who care about and assist them – to raise awareness and generate action. Rare Disease Day is for every, and below are some ways to participate:
- Share your own story of life with a rare disease
- Check out different graphics to post on your social media accounts
- Share posts from other people and organizations to increase awareness
- Join in on a local Rare Disease Day event
- Raise awareness on social media (#ShowYourRare, #ShowYourStripes, #RareDiseaseDay, #Pledge4Rare, #CareForRare)
- Find out more here
Facts and statistics about rare diseases, check out NORD’s