Coping in Isolation: Sarah – COVID Video Series

A woman with chin-length, black hair is looking out of a window.
SARAH, 43, Oakland, California Sarah is a librarian by day and a patient advocate by night. She is 43 years old and works as the director of the digital library in Oakland. She has been diagnosed with Ehlers-Danlos syndrome fifteen years ago, and additionally lives with many other conditions, including an immunocompromising mold toxicity ... Read more

Coping in Isolation: Shelly – COVID Video Series

Shelly, a woman with light brown hair sits on a bench. She smiles and wears a pink jacket and perl earrings.
SHELLY, 48, Los Angeles, California   Shelly is 48 years old and lives in Los Angeles. Immediately after moving to LA in January, she has found herself in self-isolation. Shelly works for ABILITY, specifically on abilityE, the disability casting resource for the entertainment industry. She lives with a condition called cavernous angiomas, small, raspberry-like ... Read more

Coping in Isolation: Emily – COVID Video Series

Emily, a woman with long, brown hair sits on a couch smiling. In her arm is a fluffy, white puppy.
Emily, 31, California   Emily is a 31-year-old occupational therapist who focuses on helping other people with disabilities gaining independence living skills. Emily herself is living with a rare condition called Ehlers-Danlos syndrome that has  a major effect on her life. Because of EDS, Emily has had strokes, spinal cord injuries and developed adrenal ... Read more

Challenges and Chances: Navigating the US Healthcare System with a Chronic Condition

A woman with short brown hair sits in a kitchen. She is wearing a black hat, large earrings and a black shirt with white polka dots
“Do I have cancer? This thought had been on my mind for months. I could have received answers immediately, but my insurance kept denying the MRI necessary to rule out cancer. I am just one of many people fighting for their rights within the US healthcare system every single day.” ABILITY Magazine speaks with ... Read more