Rare Disease

Firebuds — Disney Junior Shines Spotlight on Disability Inclusion

“Firebuds” weaves disability and health topics into many of its storylines, and characters with disabilities are featured in several episodes. Disney’s commitment to disability inclusion is also evident in the casting of actors with disabilities to voice select “Firebuds” characters. ABILITY Magazine caught up with Sammi Haney who voices “Piper” and Henry Shipp, the ... Read more

Chandra Wilson – From Grey’s Anatomy to CVS’s Mitochondrial Anatomy

Dear theater, Grey’s Anatomy, and everything Emmy nominated Chandra Wilson fans! ABILITY is happy to share our interview with Wilson. Born and raised in Houston, Texas, she is an upbeat, positive, light of a human. Drawn to the stage from a very early age, seems like theater was her first love and something she ... Read more

Together, we aren’t rare! Let’s talk about Ehlers-Danlos syndrome

Twenty-five million people in the US are affected by rare diseases – many of them are genetic and life-limiting. One of these conditions is Ehlers-Danlos syndrome (EDS), an unknown and neglected disorder of the connective tissue that can lead to severe disability. Over the last years, popular figures like Jameela Jamil and Mandy Harvey ... Read more